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Rett's Roost Creating Rett’s Legacy
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Creating Rett’s Legacy

Welcome to the Rett’s Roost blog! We know it’s a little light on content, but rest assured (Rett’s assured?), we’ll be working hard to cull a cornucopia of content—stories and observations, research articles and studies, the funny, heartwarming, and everything in between.

If you haven’t already, do be sure to peruse our website, and learn a bit more about our mission. For those who don’t know, Rett’s Roost was launched in honor of Everett Thomas Cavan, our special little boy, who passed away in February after a four-month battle with a malignant Rhabdoid tumor.

Everett’s journey has forever changed us. And while there isn’t a minute that goes by where we don’t think about him—ask for his counsel, acknowledge his various jokes and pranks, or just tell him how much we love and miss him—Rett’s Roost has imbued us with such a palpable purpose. It’s about helping families, and providing them a loving outlet for the impossibly broad spectrum of emotions that accompanies anyone’s journey through cancer.

You can learn more about our humble organization by traipsing through our tabs. (It’s fun—try it!) As you do, think about a child you know who is fighting cancer. Maybe it’s someone in your family. Maybe it’s the son or daughter of an old high-school friend. Whatever your connection, let them know about Rett’s Roost. Whether they’re looking for a relaxing, rejuvenating retreat (free of charge) or simply interested in sharing their experiences with a likeminded community, we want Rett’s Roost to have a little something for everybody.

In the meantime, be sure to check back with our blog for regular updates and information. And don’t forget to like us on Facebook and follow us on Twitter!

From all of us here at Rett’s Roost—and especially our blue-eyed spirit boy—thank you for taking the time to get to know us. Here’s hoping we can return the favor.

Much Love,

Deana (Mama) and Jim (Dada)