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Our Musings | Rett's Roost

Our Musings

Jim and Deana’s Blog – From Darkness comes Light

After losing Rett to a malignant rhabdoid tumor of the liver and lungs on 2/22/15, we became committed to finding peace behind the pain. It feels like the only way to get over the loss. We want to remain a part of the childhood cancer community.

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Family with Rett

A year farther gone, yet closer in Spirit

It’s been a year since we’ve posted in these Musings–which doesn’t mean that we don’t muse over our son on a daily basis. Honestly, it’s just hard to continue to write about a boy who is no longer here, and hearts that continue to be broken. Another New Year is upon us, which is just another hard day… Read more »

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301 Days & A New Year

While I wouldn’t say I’m completely in tune with the spirit world, Rett continues to knock us over the head with his signs. I find it fascinating that his angelversary last year was on the full moon and his sister was born on the new moon two weeks later. Full moons are all about letting go,… Read more »

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The Families that Keep Blowing our Hearts Wide Open

I started Rett’s Roost because I heard a calling—from Rett or God or both—to heal myself through healing others. I believed that surrounding myself with families that had faced pediatric cancer like we had would somehow ease the sadness of losing Rett. And it has done just that—with each retreat my heart explodes with love…. Read more »

Rett Love Post

Love after Losing a Child

Last year on Valentine’s Day, we were preparing to leave for St. Jude—a final glimmer of hope for our son. Instead of going out on a date, my husband and I were at our local hospital getting a final dose of antibiotics infused into Rett hoping to protect him from a plane of germs. I… Read more »

Rett with background

The Gift of Grief

It’s been just about ten months since I held him in my arms–the same amount of time we got to spend with our son in this lifetime. And during this time, I’ve read a lot about grief and followed other people’s journeys through it, because I’d never really felt anything like it before, and I… Read more »